So the NICU had made several appointments for us once the girls were discharged. Today, I took them to the pediatric cardiologist at the hospital. Most preemies have tiny holes in the ventricles (between their lungs and hearts) -from what I understand (which is not much). Neve’s hole was pretty tiny today (Thank GD). The doctor said that she is almost certain that Neve’s hole will close by itself over the nextcouple of years, and if not- it’s so small that there is no need to worry. I guess that was the “good” news. Soleil’s hole is larger and needs to be monitored. The specialist said that if it doesn’t clear up by itself over the years, then we will have to take care of it. She said that surgery isn’t necessary- that there are other less invasive ways to deal with it. She wants to see them in a year from now. Great- how can I not worry?
I mean, on top of that when I took them for their eye appointments last week, the doctor said that Soleil has something on her right eye that he wants to monitor as well- so she has to go back at the end of feb for another appointment. I mean, I know I should be grateful that my daughters are fine otherwise (that we know of at this point anyway)- but I still worry.
I go back to work on Monday. I cant wait- but I fear the nights. What the heck are we going to go? How will we work their feedings? Soleil has been sleeping for a good 4-5 hours at night (at times), but Neve wakes up every 3. My husband and I have not come up with a solid plan as of yet, and time is running out. I received so many suggestions (thank you!) about what to do. It’s either breaking the night down in middle and each person has their shift, both of us waking up to feed them together (and if one wakes to feed, than to wake the other)… no idea what to do. Most women go back to work when their babies are 3 months old and pretty much sleeping well at night. I am not so lucky, considering my children were preemies and although they are about 2.5 months old, they are developmentally like newborns- thus the feedings every 3 hours.
On another note- I need advice. Soleil cries- a lot. I guess to us its a lot since Neve rarley cries. Now, if she is dry, fed and has no fever- what do we do? Can we let her cry it out? Is she still too small to let her self soothe? I have been reading a lot that says that they are still too small to cry it out, but I cannot run to comfort her at every moment. She loves to be held, and of course, I can understand that. But I dont want her to get used to being held on demand. What are some of your experiences?
Here are new pics of Neve & Soleil:








